Overview

• When Bruce Willis was diagnosed with frontotemporal dementia in 2022, Emma Heming Willis received no actionable guidance and spent months researching the disease herself.
• Drawing on interviews with experts, she discovered that caregivers must prioritize their own well-being to sustain quality care over time.
• On May 26 in Las Vegas, she was recognized at the Women’s Alzheimer’s Movement Forum at the Cleveland Clinic Lou Ruvo Center for Brain Health for her advocacy work.
• Her book, The Unexpected Journey, will be published on September 9 to serve as a practical roadmap for new caregivers facing FTD.
• She has backed legislation and resolutions nationwide to raise FTD awareness, a cause Maria Shriver praised as a unifying, nonpartisan issue.