French Senate Unanimously Passes ALS Patient Care Reform

Senator Gilbert Bouchet, battling ALS, makes an emotional plea for improved support, leading to legislative change.

Senator Gilbert Bouchet, who is suffering from ALS, personally addressed the Senate to advocate for better patient care.
The proposed reform aims to reduce the average 5.9-month wait for disability compensation, which is critical for rapidly progressing diseases like ALS.
The legislation introduces a procedure to expedite support for severe, fast-progressing conditions, with a specific list of eligible diseases to be determined by decree.
An age barrier that limited benefits to those under 60 will be lifted for ALS patients, allowing them to receive more advantageous support regardless of age.
The reform, which could cost €30 million annually, has garnered government backing, with financial support promised if it passes in Parliament.