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Global Consensus Effort to Rename PCOS Advances After Broad Support

The consensus process seeks a new name that reflects the syndrome’s broader health impacts.

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Overview

  • Polycystic ovary syndrome affects one in eight women and is linked to elevated risks of diabetes, heart disease, infertility and mental health disorders.
  • A Monash University–led survey of around 7,700 clinicians and people with PCOS found that 76% of health professionals and 86% of patients back a name change.
  • Potential new names have been narrowed to terms such as “endocrine” and “metabolic” to better capture the condition’s multisystem effects.
  • International PCOS guidelines issued in 2018 and 2023, along with resources like the ASKPCOS app, have driven significant improvements in awareness and clinical understanding.
  • Medical societies and patient advocacy groups across six continents have launched a multi-step consensus process, including a fresh international survey to finalize the new name.